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The subjective value of a life with Down syndrome: Evidence from amniocentesis decision

Gajdos, Thibault; Garrouste, Clémentine; Geoffard, Pierre-Yves (2016), The subjective value of a life with Down syndrome: Evidence from amniocentesis decision, Journal of Economic Behavior & Organization, 127, p. 59–69. 10.1016/j.jebo.2016.04.014

Type
Article accepté pour publication ou publié
Date
2016
Journal name
Journal of Economic Behavior & Organization
Volume
127
Publisher
Elsevier
Pages
59–69
Publication identifier
10.1016/j.jebo.2016.04.014
Metadata
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Author(s)
Gajdos, Thibault cc
Laboratoire de psychologie cognitive [LPC]
Garrouste, Clémentine
Laboratoire d'Economie de Dauphine [LEDa]
Geoffard, Pierre-Yves
Paris-Jourdan Sciences Economiques [PJSE]
Abstract (EN)
Using a simple theoretical decision model and an original database, we were able to elicit the distribution of the utility value of having a child with Down syndrome for a large sample of French pregnant women (n = 28,341) between 2003 and 2007. We found that, on a scale where the value of a fetal death is 0 and the value of a healthy child is 1, the mean value for a child with Down syndrome is about −0.6. Assuming that the policymaker used the same decision model as the women, we infer from the French amniocentesis reimbursement regulation an implicit social value for a child with Down syndrome of −2.5. We conclude from our study that the policymaker is more likely to prevent the birth of children with Down syndrome than French women themselves.
Subjects / Keywords
Amniocentesis choices; Expected utility framework
JEL
I18 - Government Policy; Regulation; Public Health

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